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Dear Chronic Illness, compiled by Pippa Stacey
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How To Network Online by Pippa Stacey – eBook
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How To Study Online by Pippa Stacey – eBook
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University and Chronic Illness: A Survival Guide by Pippa Stacey
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[#AD] Though this first pic is a bit of a throwbac

[#AD] Though this first pic is a bit of a throwback, the last time I saw live entertainment was 6th March 2020 - right on the edge of the first lockdown. And as much as I’ve been elated to see the increase in virtual and accessible events (and I’m fighting hard for them to stay even as restrictions ease), I cannot blummin’ wait to be experiencing live, in-person entertainment once more. Even just thinking about it makes me feel all warm and glowy 🥰🙈
All of that said, I know I won’t be the only one here still being extra vigilant and constantly evaluating what feels safe and comfortable to do. Even though it pains me and I’m going to have all kinds of FOMO at the time, I won’t be rushing back into indoor theatres as soon as they open. And that’s why I was especially excited when I heard about what our good old Yorkshire is plotting for this summer...
This September, Vivo Live are bringing Picnic Proms to @harewoodhouse for a series of summer concerts. The events have all been planned with social distancing in mind, and what made me happiest of all was their emphasis on supporting freelance musicians who we all know been among the hardest hit in the industry throughout the pandemic. The Yorkshire Symphony Orchestra (@yorkshiresymphony) has been specially put together and revived after 66 years, and they’ll be accompanying The Great Yorkshire Proms and Queen Symphonic events, though personally it’s Alfie Boe’s night I’m hoping to make it to...
And not just for Boe, but for his special guests - Louise Dearman (one of @wickeduk’s most iconic names) and Rachel Tucker (also a Wicked legend and who more recently absolutely floored us in @comefromawayuk). Oh my goodness. It makes my stagey heart ache even just thinking about it.
You can find out more about all three events and book your tickets at vivolive.co.uk/harewood. Which event would you choose - Alfie Boe and special guests, The Great Yorkshire Proms, or Queen Symphonic? 🎭✨

Every single thing @thisthingtheycallrecovery crea

Every single thing @thisthingtheycallrecovery creates is an absolute mood and this tee is no exception 💆🏻‍♀️
I’m conscious of how I word this and I’ll of course acknowledge my privilege here right off the bat, but can I share an ongoing frustration with you?
I want to write. I need to write. I don’t feel okay because there is so much in me that I need to write and my body isn’t capable of making it happen.
And no, that’s not an invitation to tell me that I can do anything I put my mind to, or that this is something I can *overcome* through mindset alone. Believe me, I’ve tried. It was only at the start of this year that 10 rebellious extra minutes of writing when I knew I should stop, on just one occasion, made me really unwell for over a month.
I don’t know. My heart goes out to anybody else who can relate to this because right now it feels like the most frustrating thing in the world.
I know I’m privileged to be able to call myself a writer. The fact that writing somehow became my job, not just my hobby, is one of the best things that could ever happen to me. And more than anything, I’m thankful that this wretched illness, which has taken so much away, hasn’t completely taken away my ability to write. It’s something I’ll never, ever take for granted.
But the more I get to write, the more I need to write before it feels like it’s enough. There is so much I feel like I need to do. And even though I know I’m going to give it my blummin’ best shot, I know that I can’t do it all.
So I suppose this is my pledge to keep giving my all to my work, but also learning to be patient. To keep making space to write just for me, along with the space to rest and recuperate. To continue saying yes but also knowing when to say no. To no longer comparing myself with everybody’s else’s paths and start following my own instead. To remembering that what I can do is enough.
If only it was that easy in practice, hey? 😬👩🏻‍💻

[AD - Press Event] Desserts and friends, the perfe

[AD - Press Event] Desserts and friends, the perfect blend. This is the face I make when I know waffles are on the agenda 😌🥞
Thank you for a gorgeous night, @heavenlydesserts! Their York store officially opens tomorrow and not to be dramatic but their waffles have changed me as a person.
I had the vegan Raspberry Love waffle and we both had passionfruit Mojitos and OOFT. I’m ashamed to say I was slightly defeated by my dessert but it was all so fresh and absolutely gorgeous - @ffi_jones and I were in our element 🙈😂
Such an adorable venue with equally as wonderful staff. Safe to say we will be back!
Are you a dessert person? What’s your go-to dessert of choice? Just the other day I was harping on to my parents about just how much I was craving proper waffles so I’m far too excited about this. Perfect way to round off a hectic but quite promising week 🥰🥞

Yay! Really pleased to share that @astriidcharity’s first research report, Employment And Long-Term Illness, is now live!
This was a long time in the making. It’s just a small, in-house research project but I really hope it shines a light on some of the unique challenges of finding and being in work with a chronic health condition, and how often these challenges can be cast aside in wider conversations about disability and employment.
If you took part in the survey (almost a year ago now, goodness!), thank you so much. By sharing your thoughts and experiences, you allowed us to capture data and insights into the challenges of finding and applying for inclusive roles, barriers in job roles and securing workplace adjustments, difficulties communicating with employers and line-managers, and snippets of a much wider conversation we need to have about energy-limiting chronic illnesses and work-life balance.
It’s a hefty read and we’ll be sharing more digestible chunks on @astriidcharity’s social media over coming weeks, but you can find the whole report via Astriid’s website. I’ll pop a link in my bio!
In a personal capacity, I’m so glad this is finally out there. There were lots of challenges, changes, and hold-ups we faced throughout the process and there’s *so* much I’ve now learned and can improve upon for next time... and I really hope there’ll be a next time! There’s so much further we can take this.
I’ve loved working on this and I hope it goes some way in shining a light on an issue that’s only going to become more prominent in the coming years. The situation is still pretty dire for those seeking accessible work with a long-term illness but between Chronic Illness Inclusion’s recent work and what we’re trying to do through Astriid... I have hope. I really do.
A change is overdue, gang. Let’s make it happen. ✨

Swipe to see the transition from cute and wholesom

Swipe to see the transition from cute and wholesome mini golf adventures to an increasingly ragey and competitive afternoon... 🙈😂
Bit of a spontaneous plan this afternoon but @puttstars York gets a thumbs up from my best pal and I! Really lovely staff and something a little bit different for a drizzly afternoon that cancelled our original plans. Think I got a tad more invested in the game than I realised by the looks of some of the photos on my camera roll...
It was such a nice surprise to find the venue was wheelchair accessible, really modern facilities and nice and easy to move around the space in. The actual playing spaces are raised rather than level access so though you can easily move around between holes, you would need to be able to stand and walk a little to actually play the game - fine for me as an ambulatory wheelchair user (worked really well for my needs actually!), but something to bear in mind if you’d need to be seated or minimise movement.
Lots of lovely food and drink options with a few vegan choices on the menu... though you might spot the EpiPen peeking out of my pocket there, after spotting the mahoosive container in the diner dispensing loose peanuts which could be ordered from the menu. Very much not ideal when the little beggars put your life (and the lives of so many others) at serious risk and we wouldn’t go back unless resolved - it’s just too risky. Hopefully this post will reach the right person (I’m emailing in as well) and this feature can be reconsidered so us severely allergic folk can enjoy the experience like everybody else. You don’t need ‘em @puttstars, you’re plenty good enough without them 😇🙅🏻‍♀️
Do you enjoy mini golf? I haven’t done anything like this for the longest time but it was so much fun to do something a bit different. Vlogging this week so you‘ll be able to see a bit more of the different courses and how the games worked in there at some point if you like! #AccessibleYork

Oof, spoilt for choice for a self-deprecating capt

Oof, spoilt for choice for a self-deprecating caption today... do we point out the toddler-inspired outfit or the fact my socks have lobsters on them? 😏🦞
Speaking of lobsters, what did we all think of the Friends reunion? I’ve had a few days completely offline and off-grid so completely missed the reaction to it and haven’t had a proper chat about it with anyone yet!
Friends will always be one of my favourite shows in the universe and something that’s got me through a heck of a lot of tough times, so I was actually a bit apprehensive when I first heard rumblings about the reunion... just because of how much scope there might be for things to feel a bit iffy, y’know?
When they first announced it I didn’t get too emotionally attracted to the idea, but as soon as I started watching it completely exceeded my expectations! I’d be surprised if anybody who’s seen the series watched it and *didn’t* have all the feels or a little cry at some point...
What did you think? Any favourite moments or grievances? I’m planning on watching it at least once more before my temporary NowTV pass expires 🙈😂

Lockdown or no lockdown, I reckon these are words

Lockdown or no lockdown, I reckon these are words to live by...
Okay, I think what I want to share today is going to be tricky to verbalise but I’m giving it my best shot. I think it’s important we find ways of talking about it.
Since restrictions started easing, social media has been a tricky place. It’s been tough watching the world breathe a sigh of relief that their confinement is over and resume their lives again. From what I’ve seen, it’s been particularly tough for those who are still shielding, or vulnerable people who for whatever reason have been #LeftOffTheList for their vaccines.
For me, getting my first vaccine is the key to unlocking a *lot* of my version of normality. Once my first dose kicks in, I’m personally going to feel happy and comfortable doing a lot of the things I was able to do pre-lockdown. After my initial vaccine struggles I was expecting to be sort-of-shielding for at least another few months, so I’m all the more grateful to be in this position now.
But here’s the thing. Like I said after getting my vaccine, I am so acutely aware that so many people with long-term illnesses are flying under the radar. People who should have been called for vaccines but haven’t been. People who’ve had both vaccines and are still too immunocompromised to risk leaving the house. People who were housebound and bedbound long before the pandemic and will be for the foreseeable future.
I can’t shake the thought of how difficult it must be for people in these situations to stomach. To see everybody pick themselves up and carry on whilst feeling utterly forgotten. I had a tiny, tiny taste of that feeling when I was first excluded from the vaccinations, and from that alone I actually can’t bear the thought of other people feeling this way for prolonged periods of time as the country begins to ‘open up’ again.
So, the question I want to put to those in an ongoing lockdown is this: what can the rest of us do to show our solidarity? To show that you’re in our minds and you haven’t been forgotten?
I’m all ears, so do share anything you feel would be helpful and hopefully the rest of us can lend support where we can!

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