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  • front cover of 'university and chronic illness: a survival guide' featuring bold typography and coloured ink dots with yellow notebook in lower left corner, complete with stickman doodles representing different disabilities

    University and Chronic Illness: A Survival Guide by Pippa Stacey

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The only thing better than a stack of recent reads The only thing better than a stack of recent reads is a stack of chronic illness-inspired recent reads...⠀ ⠀ There’s a new post up on the blog now, reviewing some of my absolute favourite books centred around by chronic illness. If you’re looking for some new reading material for your time indoors, this one is for you. Link’s in my bio! ⠀ ⠀ Whether you’re looking for easily digestible and lighter stuff for brain-foggy days, non-fiction or memoirs, or more thought-provoking literary reads, I’ve got your back. It’s by no means an exhaustive list, but these are some of my personal favourites from the last year or so. Including my own, because I have no shame…⠀ ⠀ Are any of these on your TBR list? Any recommendations of your own? Do tell! 🙊📚
Obviously a throwback photo but I think we could a Obviously a throwback photo but I think we could all do with a bit of goativation this week. ⠀ ⠀ We bonded. Such a precious boy.⠀ ⠀ I don’t know about you, but it feels as though there’s this chaotic, frenzied energy about social media at the moment. So many people are jumping into action, creating tonnes of content, and doing amazing innovative things to support others, and while it would usually put a fire in my belly and inspire me to do the same, this time it’s almost had the opposite effect. I’ve had to take a very deliberate step back from it all, and although difficult, I think I’m making the right call. ⠀ ⠀ I just think everybody is hurtling headfirst into trying to find what their *thing* or their *role* will be over this period, and it’s only natural to do so. We’re human, and we’re seeking something concrete to help us make sense of these uncertain times. For many people, it’s a coping mechanism. ⠀ ⠀ The thing that worries me, though, is that this is only the beginning. If people burn themselves out with advocacy at this early stage, the coming weeks are going to be extra tough. I’ve already had to Have A Word with myself and come off social media for periods of time, because with all this action and frenzied energy, I’m starting to feel extra lethargic and even get a bit anxious about my own stuff becoming irrelevant or being forgotten. ⠀ ⠀ So, this right here is for myself as well as for anybody else who needs to hear it. Play the longer game. Take it easy, and give yourself time to adjust to these new circumstances. You don’t need to jump into immediate action to do something worthwhile. If you’re looking after yourself and showing empathy to others, you’re already doing enough. And I’m not just saying that for the sake of it.⠀ ⠀ Keep your chin up, loves. And if you need a boost in the meantime, I strongly encourage you to jump on the #GoatsOfInstagram hashtag. You won’t regret it 😋🐐
[#AD] “… whilst I’m certainly not going to a [#AD] “… whilst I’m certainly not going to argue that striving for a routine isn’t beneficial, it’s the practicalities of having such a process to life that act as a barrier. Not only does an approach like this pretty much erase the possibility of having (God-forbid) any spontaneity in life, the reality of living with a fluctuating illness can mean that having a concrete day-to-day routine just isn’t feasible.”⠀ ⠀ Today’s blog post is actually on a topic I’ve wanted to discuss for a while now: finding stability in fluctuating illness. I’m in no place to preach since I’m still trying to get the balance right myself, but I wanted to share some of the core health behaviours I personally try to keep constant, in spite of whatever else may be going on. Link’s in my bio!⠀ ⠀ I’m also thrilled to share that this post is sponsored by @safeandsound_health, who’ve recently released their new Pill Reminder App. Available for iPhone and Android devices, the app allows you to input your medication and schedule when it should be taken, sending you periodic reminders to do what you need to do, and essentially taking some of the stress out of complex medication routines. You can read my full review within the post, but in short, I’m genuinely impressed!⠀ ⠀ I’d really love to hear your thoughts on both the blog post and app, so do tell: what helps you to find stability within your own condition management? Are there any health behaviours you feel are particularly important? 💫
I was scrolling through my photo album trying to f I was scrolling through my photo album trying to find a photo that might make us all feel marginally better about life, so naturally I’m jumping back on the alpaca train. He’s practically smiling at the camera, for crying out loud 😩😂⠀ ⠀ Hope you’re all doing as okay as possible, loves. It’s a tricky time, and I’m trying to get the balance right between talking about some things that need to be talked about, and avoiding the subject in pursuit of normality. It looks like a good deal of our lovely community are going to be self-isolating over the coming weeks, myself included, and personally I think being rational about it all is key. ⠀ ⠀ There is one thing I wanted to ask though... is there anything you feel I can do? Among all the madness, it’s been so heartwarming to see people doing what they can to support or bring joy to others, and I’d very much like to be a part of it. ⠀ ⠀ I obviously can’t go out and run errands or fetch shopping for other people, and my bank account won’t stand for me donating to the threads of people sharing their stories and asking for help: if you haven’t seen them, get on Twitter and have a look. It will open your eyes. ⠀ ⠀ I have a couple of freelance pieces brewing but besides that, besides everything, is there anything else any of you feel I could do? Anything that would either tackle some important issues or just provide some light entertainment for people stuck in the house, potentially for the first time?⠀ ⠀ I do have to be mindful of my own health and wellbeing but I’m genuinely open to any suggestions, so do let me know if you have any thoughts of your own. And let’s just keep looking out for each other, hey? 🥰💛⠀ ⠀ [PS. Speaking of light entertainment, there’s a link to my new podcast episode with @InvisiYouth in my bio. Features accessible education and employment tips, bookish chats, and one of my most embarrassing ‘Life Of Pippa’ moments to date. *curtsies*]
Don’t mind me, just having a moment with my panc Don’t mind me, just having a moment with my pancakes... 😁🥞 Guys. If you’re based in York, I’m gonna need you to go to @gronkafe. They have a mahoosive range of veggie and vegan options, and I was so impressed with how they dealt with allergy requirements. The allergen book was ready on the counter to hand out to whoever needed it, staff chatted through my options and allowed me to customise my order, nuts are used in the kitchen but contained in restricted areas to avoid cross-contamination, and most importantly, there was nice food I could have!!! We all had a giggle at me asking in all seriousness if they’d double-check the ingredients because the brownie seemed too good to be true... 😌🍫 Swipe to see my berry compote pancakes (some of the best pancakes I’ve ever had), and my lotus biscoff brownie. Firmly believe that dessert after brunch should be a necessity in these trying times. My only caution is to be careful with your drinks order; my loose-leaf tea was lovely but I think ordering a pot rather than a single cup would have offered much better value for money. I didn’t use my wheelchair on this day but I *believe* the ground floor was level access, with three or four tables available on the same floor for those who don’t do stairs. For those who *do* do stairs, there’s a seriously dreamy window table on the top floor, and the decor as a whole is so gorgeous. Safe to say I’m impressed and will be back! Have you been here yet? I believe there’s one in Leeds as well! What’s your go-to pancake order? 😋💛 #AccessibleYork
Hello. Here’s a photo of my face because I neede Hello. Here’s a photo of my face because I needed something to accompany this caption. I don’t know why I slightly resemble a hamster here either.⠀ ⠀ I think I’ve asked versions of this question multiple times over the years but I still haven’t quite found the answers I’m looking for... fellow petite people, where are you buying your clothes?!⠀ ⠀ I’m constantly struggling to find nice stuff, preferably reasonably priced but ethical, that doesn’t make me look like an actual overgrown toddler. Even when I’m buying from petite ranges, dresses in particular still seem to fall longer than I’d like them to. I’m 5’2, so not even much shorter than average in my opinion, but it’s proving an ongoing struggle to find nice stuff that suits me. ⠀ ⠀ And heck, that’s before you bring the wheelchair into the equation... trying to find outfits that work for both standing up and sitting down is a whoooole other ball game. Such fun.⠀ ⠀ You lovely lot always have some fab suggestions, so any tips or recommendations would be gladly received! Any particular faves? I’m trying to shop small and ethical wherever possible, but at this point in time I’d be open to (almost) anything! 👗💫⠀ ⠀ [Image Credits: @alicelodgephotography for TEDx 2019!]
[#AD - Press] I’ll be honest, I still can’t ev [#AD - Press] I’ll be honest, I still can’t even believe I’m even posting this. If you know me at all, you’ll know that I’ve adored @Cirque since I was a tiny little wannabe performer myself, so being able to attend the UK debut of #CRYSTAL last night was pretty much a dream come true.⠀ ⠀ My review of the production is up on the blog now and linked in my bio, and I’d be really interested to hear your own thoughts. I had to sit myself down and reflect for quite a while before I could work out exactly how I felt and what I wanted to say about this one... and it’s definitely a little more complex than can be summed up in an Instagram caption, put it that way.⠀ ⠀ Above all else though, Cirque du Soleil is pure artistry and I have nothing but respect for their continual pushing of creative barriers. Have you seen any of their productions before? If you could choose, which one would you see? Alegria would be my ultimate, ultimate bucket-list pick one day!⠀ ⠀ Also thought it’d be worth mentioning for fellow vertically-challenged fans like me that Cirque have quite an epic YouTube channel: I only discovered it last year, but there’s some dreamy documentary-style videos on there all about the life of the artists and the creatives behind the scenes. Perfect way to pass a poorly day, in my humble opinion 😌🎭
[#AD - GIFTED AND GIVEAWAY!] Guys. Try and tell me [#AD - GIFTED AND GIVEAWAY!] Guys. Try and tell me these books aren’t the most beautiful things you’ve ever seen. I started collecting these @wordsworth_editions Collector’s Editions about eighteen months ago and it’s safe to say I’m completely smitten with them. The design of each book pays homage to the timeless stories within them, from the custom illustrated covers to the carefully selected and embroidered quotes on their backs.⠀ ⠀ You all know how much joy my bookshelf brings me, and it’s only in recent years that I’ve really begun appreciating collections like these; not only how gorgeous they are as individual books, but how amazing they look as a collective as well. If you know me at all, you’ll know how ridiculously happy having them all lined up taking pride of place on my bookshelf makes me... 🙊🙋🏼‍♀️⠀ ⠀ I am so, so lucky to have found kindred spirits at @wordsworth_editions who’ve not only made my entire life by helping me complete my collection, but who are also here to help some of you start your own... so if you fancy winning some of the most beautiful books in the world, keep reading! ⠀ ⠀ FOUR lucky winners are each going to receive FOUR titles of their choice from this collection. To enter, simply follow @lifeofpippa and @wordsworth_editions, and tag a friend who might also like this giveaway in the comments below. For a bonus entry, share this post on your story and tag us both so we can see it! ⠀ ⠀ By no means a compulsory step, but I’d really love to hear your personal favourite book from the collection too; all sixteen titles can be found in the photo above, or at https://wordsworth-editions.com/collections/collector's-editions.⠀ ⠀ This giveaway is open to UK residents only, and four winners will be chosen at random and contacted directly. Entries close a week from today, on Thursday 12th March (12pm GMT), so get your entries in and let’s share alllll the bookish love! 🥰📚 #WorldBookDay
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