spoonie survival kits logo, text graphic surrounded by purple and blue circle of flowers, with two crossing spoons at the bottom

First things first, PURCHASE THE EBOOK HERE* OR THE PAPERBACK HERE.* You know you want to…

“Dear M.E,   

If this letter was part of an inspirational movie, I’m sure I would be saying a heartfelt thank you. Dramatic music would play whilst I’d gush about how becoming ill changed my life for the better and helped me discover more about myself as a person, whilst I waltzed off into the sunset with a handsome prince and some kind of small fortune due to a dramatic plot twist. 

Unfortunately, this is not an inspirational movie. Instead of waltzing off into the sunset, I manoeuvre an unreliable wheelchair along a questionably uneven pavement. Instead of finding a handsome prince, I concentrate on finding the most qualified medical professionals to manage my condition… with bonus points if they happen to be attractive, of course. And my plot twist isn’t a small fortune: it’s not knowing if, when or how I will ever get better.” 

– Pippa Stacey. Dear Chronic Illness (Kindle Locations 171-173). Wallace Publishing. Kindle Edition. 

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illustrated headshot image of lady gaga feeaturing blonde hair, blue bow and lightening strike face paint, and sunglasses

Image by Alchemistsoft (Pixabay)

Lady Gaga is without a doubt one of the most iconic pop legends of our time. Having dominated the music scene and headlined Coachella, given one of the most talked-about Superbowl halftime shows in decades, and of course left a lasting legacy on the world in the infamous meat suit, what could possibly dare to stop her in her tracks? The answer is simple: fibromyalgia. View Post

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girl in jeans and t-shirt in wheelchair on an outdoor balcony

After being diagnosed with a chronic illness halfway through my time at university, one of my biggest achievements to date has been continuing my studies, and graduating with a 2:1 BSc degree from a Russell Group institution in 2016. What I didn’t know at the time was that this was only the beginning of the battle; that the subsequent search for accessible employment opportunities would be even more difficult to navigate. View Post

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I first met Erin Siobhan Hutching through my work with Scope, and obviously jumped at the opportunity to have a natter about inclusive theatre with her: the following post has been published with the permission of the Scope Stories team and The DH Ensemble. Enjoy, and let me know what you think!

On stage photo of two women stood up with one hand raised in the air: one woman looks confident and the other more uncertain

Going to the theatre is an experience enjoyed and cherished by many families, particularly over Christmas and the New Year. However, like many other recreational activities, theatres and shows often fail to be wholly inclusive of disabled people. Although the accessibility of venues has now begun to increase, the content and suitability of individual productions for those with specific impairments continue to exclude multitudes of disabled people from enjoying these shows for themselves. View Post

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