Finding Accessible Work With A Chronic Illness

image taken from above of silver laptop open on white bedsheets with hands typing on keyboard, iphone laid on the left hand side

So, let’s talk about working with a chronic illness.

Since I started blogging, there’s one question I’ve consistently been asked more than any other: how I find my flexible, work from home opportunities. As a self-employed chronically ill writer, I currently split my time between consultancy and content creation in the charity sector, freelance writing and editing, blogging and social media shenanigans, running my social enterprise (Spoonie Survival Kits), and incessantly guzzling tea whilst making extensive to-do lists.

You can find out a bit more about my background here, and read more about my personal career journey so far (including employment and self-employment!) in this post.

This post first came about rather spontaneously, following preparations for a livestream where I was to discuss accessible employment and managing work with a chronic illness. It was whilst doing my prep that it hit me: although there are a fair few of us talking about our personal experiences, there isn’t really a great deal of practical support and signposting to actual resources and opportunities.

So, that’s led me here: to a blog post hastily put together before the livestream, which I’ve since returned to and have been expanding ever since. It’s no secret that there simply aren’t enough flexible opportunities out there for chronically ill people, with many employers yet to realise they’re missing out on a huge wealth of talent, but I’m working on it. And in the meantime, I hope these resources go some way in helping others to kick-start their own careers.

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My Hair Loss Story, And How We Turned It Around

pippa stood outdoors with back to camera, displaying long brunette hair

I wrote the beginning of this post a while back and saved it as a draft, unsure of whether I felt comfortable sharing it. However, since the gang at CareCo kindly sent me a really fitting product for review, I thought I’d take it as a sign and include that review in this very piece. Keep scrolling for my thoughts on their Infrared Massage Hairbrush, but first, here’s that post I thought I’d never be sharing… 

Lately on social media, I’ve had some really lovely comments about my hair and how much it’s grown. Now, anybody going out of their way to compliment me and make me feel like a precious lil princess is welcome any time of the day, but the recent comments about my hair have been particularly appreciated: namely because for the longest time, I was struggling to hold onto it.

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Disney Made Me Question My Disability

pippa and izzy stood either side of and posing with mickey mouse

This piece was originally written for Scope’s online community, but I never got around to sharing it on my blog. It was this time last year that we were in Disneyland Paris living our very best lives, so here’s something of a throwback…

Something I often consider is at what point an invisible illness becomes visible ‘enough’. Why? Because despite using an extremely visible mobility aid, many non-disabled people are still inclined to question whether I actually look unwell enough to use a wheelchair. I’ve talked many a time about people’s perceptions of my invisible condition, and what it’s like to be an invisibly ill wheelchair user, however it was my recent experience at Disneyland Paris, using their access card system for the first time, that was a particular eye-opener for me.

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#ScooterGirlCampaign – a chat with Tanyalee Davis

selfie of tanyalee and pippa, smiing at camera

As I’m sure many of you have seen, comedian Tanyalee has had her fair share of public transport issues lately. From being asked to move her mobility scooter to give priority to a passenger with a folding pram, to literally being left on a train when assistance failed to show up, it’s been one thing after the other. Ahead of Tanyalee’s performance at York Fringe, I had the opportunity to chat to her about the status of mobility aids, the tiresome act of arranging assistance, and accidentally beginning an accessible transport movement…

View Post#ScooterGirlCampaign – a chat with Tanyalee Davis