Creating A Social Enterprise With A Chronic Illness – The Story Of Spoonie Survival Kits

As I say goodbye to Spoonie Survival Kits, it felt only right to reflect on how the heck we even got here. Indulge me while I tell you the story, will you?

The Background

2014 Pippa really wasn’t thriving. On the outside I was trying to live my best life and enjoy being a student, but inside I was reeling from finally, finally being diagnosed with a chronic illness – a diagnosis that had raised more questions than it had answered. I had absolutely no idea what the future would hold. It was a struggle to get through each day, not only physically from the toll of ME/CFS symptoms, but mentally too. For a long time, I felt completely dispensable. I’d lost my sense of purpose, and I’d definitely lost my sparkle.

I can still remember the exact moment that the concept of Spoonie Survival Kits came to me. A few months after my diagnosis, full of listening and learning, I’d begun mulling over what I could do to raise some much-needed money for ME/CFS charities. I obviously couldn’t do any sponsored walks or runs or anything that involved physical activity beyond the mammoth remit of putting the kettle on, and I wanted to do something a bit different to the usual (albeit incredibly beneficial) care package schemes that are popular in the chronic illness community. I wanted to do something where I could simultaneously raise money for deserving causes, spread a bit of cheer, and ideally not completely destroy myself in the process.

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