Finding Stability Within Fluctuating Illness [AD]

pippa's hand holding iphone displaying safe and sound medication reminder app, with pill box and tablets visible in the background

[#AD] Many thanks to Safe And Sound for sponsoring this post; you can find out more about them and download the free Pill Reminder App here. As always, all opinions are my own!

When it comes to chronic illness, there’s one piece of advice it seems healthcare professionals just cannot resist sharing: it’s all about having a routine. Time and time again, we’re led to believe that scheduling each and every one of our waking moments and following the exact same pattern for the foreseeable future is the key to unlocking wellbeing and becoming the best version of ourselves.

And whilst I’m certainly not going to argue that striving for a routine isn’t beneficial, it’s the practicalities of having such a process to life that act as a barrier. Not only does an approach like this pretty much erase the possibility of having (God-forbid) any spontaneity in life, the reality of living with a fluctuating illness can mean that having a concrete day-to-day routine just isn’t feasible.

To me, then, it seems it’s all about finding a balance: the middle ground between having go-to rituals that help to structure my day, but also maintaining the flexibility to shuffle things around depending on how I’m feeling and what’s happening in my life. Contrary to popular opinion, I’ve found that relaxing my own expectations around planning my day and (please excuse the phrase) going with the flow is actually what works best for my symptoms. That said, however, there are still a handful of practices that I prioritise and attempt to implement into my life more rigidly, and it’s these that I’d like to share with you today.

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Aids and Equipment for Managing Fatigue [AD]

pippa sat cross legged on bed holding up sign that says 'it takes me twice as much energy to achieve half as much as my peers'

[AD] This piece is sponsored by CareCo Ltd and features affiliate links. More information can be found at the bottom of this post!

Something that comes up a lot in conversation is how I negotiate living independently whilst dealing with long-term chronic fatigue. And whilst that’s a broad topic to tackle all in one go, I thought I’d begin to answer that question by sharing some of the aids and equipment I use in day-to-day life that help me to manage my symptoms.

There are various things out there to assist with practical tasks, and technological advances are increasing by the day, but I wanted to think about how these could be applied to fatigue in particular. You’ll see from the list below that the items I use range massively: some are bigger, more costly mobility aids specifically for disability, whilst others are cheap and cheerful household products.

I’m sure that anybody reading this will already be aware that different things work for different people, and it’s all about finding what works best for you and your lifestyle. And for me, the things that work include the following…

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