Comments for Life of Pippa

Comment on Wheelchair Accessible Sightseeing By Boat With City Cruises York [AD] by Avril Ementon

Avril Ementon — Tue, 03 Mar 2026 12:06:38 +0000

This was so helpful for me when booking a river cruise, thank you.

Comment on For The ‘In-Betweeners’: The Invisible Challenges Of Moderate Chronic Illness by Cathelijne Filippo

Cathelijne Filippo — Fri, 26 Sep 2025 07:39:07 +0000

What a good way to put it ‘in-betweener’. Thank you for this piece! I can certainly relate! I’m on a slightly more severe side of in-betweener as some years ago. It seems like a bit of a spectrum we can move up and downwards on. Let’s hope it moves upwards again soon.

Comment on Volunteering From Home – Flexible, Inclusive Opportunities For All by Dr. Barbara R Edwards

Dr. Barbara R Edwards — Thu, 22 May 2025 16:45:26 +0000

Flexible volunteering options make giving back so much easier. This approach to inclusivity is refreshing. Thanks for sharing.

Comment on Rare Disease Day – My Erythromelalgia Story by Pippa Stacey

Pippa Stacey — Thu, 06 Mar 2025 14:33:42 +0000

In reply to Helen.

Ahh thank you for sharing Helen and I’m sorry to hear you’re suffering with it too – you’re not alone! I’ve recently started using Capsicolle cream (purchased myself) as the Capsaicin still isn’t available on prescription – too early to say whether it’s making any difference but here’s hoping!

Comment on Rare Disease Day – My Erythromelalgia Story by Helen

Helen — Sat, 01 Mar 2025 07:22:49 +0000

Thank you for sharing this. I experienced severe episodes of Erythromelalgia after I was diagnosed with long Covid. I was trying to very gently exercise to help with my pots when my hands and feet would swell and burn and turn bright red. I posted in a PoTs chat thinking it was blood pooling but someone replied saying- it looks like Erythromelalgia. Like you, my GP had never heard of it, and unfortunately I wasn’t referred any further. A rheumatologist diagnosed it by letter but didn’t see me. It’s only now a few years on I’d like to re look into it, and see if there’s anything I can do to help it, and rule out any other causes. It’s definitely worse in the winter! The slightest drop of alcohol, or even the most mild exercise, or the heating being on flares me up.

Comment on Volunteering From Home – Flexible, Inclusive Opportunities For All by Pippa Stacey

Pippa Stacey — Thu, 12 Dec 2024 11:04:18 +0000

In reply to Rachael Pierce.

Hi Rachael, I can’t connect you myself but if you try getting in touch with the places listed in the article they may be able to help – and I bet they’d be so grateful for your skills/experience too! I hope you find what you’re looking for!

Comment on Volunteering From Home – Flexible, Inclusive Opportunities For All by Rachael Pierce

Rachael Pierce — Thu, 28 Nov 2024 23:12:17 +0000

Hi, I was a support worker for 20 years then diagnosed fybromyalgia and fnd. Now unfit to work but really miss helping others. Online on phone volunteering would be great if any space?

Comment on Non-Fiction Books By Disabled & Chronically Ill Authors by Kristel Wood

Kristel Wood — Sun, 03 Nov 2024 02:41:08 +0000

I highly recommend “Say Hello” by Carly Findlay (and her blog of short form content too) and also “Growing up disabled in Australia” edited by Carly Finlay an anthology.

Comment on North York Moors By Wheelchair – Chronic Illness Travel Diary by Amanda

Amanda — Sat, 26 Oct 2024 11:37:45 +0000

Brilliant review. Both my daughter and I are ambulatory wheelchair users. I quite fancy a family day at Dalby Forest. The grandkids can cycle and grandma follow in a Tramper. Ideal bit of fresh air to liven us up.
(I came to the blog via Linkedin).

Comment on The Best Wheelchair-Accessible Bars In York by Pippa Stacey

Pippa Stacey — Sat, 12 Oct 2024 12:48:00 +0000

In reply to Faith w. Hope you had a great time!