Comments on: Aids and Equipment for Managing Fatigue [AD]

By: Pippa Stacey

Pippa Stacey — Thu, 11 Jan 2024 09:59:35 +0000

In reply to Eileen C. I'm so glad it was helpful, thank you so much for the kind words Eileen! Sending only good wishes your way!

By: Eileen C

Eileen C — Thu, 04 Jan 2024 18:02:14 +0000

Thank you ever so much Pippa for this. I was recently diagnosed with two long term conditions: Fibromyalgia and Functional Neurological Disorder which is still not understood by most people, even medical personnel. Your comprehensive list is the most helpful thing I have come across in the last year. Thank you for taking the time to share these insights to help others like us, who often feel lonely and just get on with situations, despite how challenging simple tasks usually are. I have related with at least 50% of what you have written about and I am really grateful. Keep up the amazing work.

By: Pippa Stacey

Pippa Stacey — Sun, 20 Aug 2023 14:03:32 +0000

In reply to Rachel. You're very welcome Rachel, thank you for reading! Hope you find some stuff that helps you, the headphones can be an investment but I wish I'd gotten them years earlier!

By: Rachel

Rachel — Wed, 26 Jul 2023 13:39:05 +0000

In reply to Pippa Stacey. This list is very helpful. Love the kettle app idea and the sponge on a stick. I find scrubbing anything is the fastest way to drop my body battery. I think the best idea that I wish I'd thought of is the noise cancelling headphones. I think I may need some kind of shades too because noise and light are my biggest issues. Thanks so much for normalising these issues and providing some solutions.

By: Pippa Stacey

Pippa Stacey — Thu, 04 May 2023 13:17:33 +0000

In reply to Vana.

No problem, just asked my Mum who got it for me and she said it’s from Barker and Stonehouse – can’t remember the exact make or model but the specialist mattress came with the frame and it’s lasted well for 5+ years for me so far!

By: Vana

Vana — Wed, 19 Apr 2023 09:53:52 +0000

Hi, I wonder if you would be able to say where you got your electric bed from? Also what type of mattress do you use? I’m finding myself in bed most of the time now due to ME and Pots, and my current mattress is not supportive enough. Contemplating an adjustable bed.

By: M&s s Barrett

M&s s Barrett — Sat, 01 Jun 2019 00:09:19 +0000

I find when I hit The crunch point as u call it. I like to use a wheat cushion you can heat up in microwave which is quick and easy to do or for someone to do for me safely The heat lasts longer than a hot water bottle and us easier to position where you need it most or use two. I found investing in a mattress topper great as it raises the bed height a BIT and makes it easier to get up from bed whilst using my grab rail I have fitted on BED. I found buying a raised toilet seat great as used less effort to get on and off. I have a blanket and pillow in lounge so if I can’t make it to bed room I have a well needed rest in my leg raise push back arm chair I got at second hand furniture store I have purchased extra walking sticks / crutches and have these in most parts of home and garden just in case I hit rock bottom and need to grab them . I have more second hand chairs in garden so I would only have to walk a short distance to rest and relax and enjoy fresh air and garden I find now after many years it’s good to plan ahead I hope some of these ideas help.

By: Kirsten

Kirsten — Mon, 27 May 2019 09:39:15 +0000

I love all these ideas! I can’t live without my pill organizer and shower stool. The book holder seems really helpful! I could also use it for my Ipad. I’ll have to look more into it!

By: Lucy

Lucy — Sun, 26 May 2019 15:23:40 +0000

These all look great. I’m going to look in to a foldable stool for in the kitchen.