Comments on: Blue Badges and Invisible Illness – My Experiences

By: Rachael Emma Tomlinson

Rachael Emma Tomlinson — Fri, 06 Sep 2019 10:55:18 +0000

I totally get where you are coming from and almost feel fortunate that I received my blue badge when I had a diagnosis of cfs, my council where very understanding and even though i didn’t fit in the boxes she made it fit for me, hopefully with the addition of invisible illness’s from 31st august it will get easier, don’t give up xx

By: Suzanne (FibroMomBlog)

Suzanne (FibroMomBlog) — Wed, 24 Apr 2019 04:11:49 +0000

This article is so eye opening. The lack of education and awareness in regards to invisible illnesses is astounding. I know there are so many people going through this like you and I’m so happy you are bringing more awareness. I don’t have the courage to even try, I know I will be denied.

By: Susan

Susan — Tue, 23 Apr 2019 21:40:54 +0000

Bill, your correct. As it’s realised more of us have invisible disabilities and apply for help, web, paper questionnaires as well as people will require change but people having these disabilities like us, must be involved in their modification.

By: Bill Clayton

Bill Clayton — Tue, 23 Apr 2019 17:33:31 +0000

Hi Pippa. I’m really sorry to hear of the situation you’re in with the Blue Badge system. I’ve just renewed mine for the first time, and on the application form I totally ignored some of the questions as they didn’t identify will ME at all. Instead I wrote how far I could walk, the fact that most days I couldn’t, and the fact that without a Blue Badge I could well be unable to shop as any energy I might have could be used just walking across the car park of the larger Supermarkets.

During the test for my initial application, I was to be taken out to the car park to do a walk test, but when I had to stop for breath and because of the pain before we left the building, the lady understood and my application was granted.

If they are to bring in a system that allows for Invisible Illnesses, it must be created, and the forms designed by people that know the illness well.

By: Amy Saunders

Amy Saunders — Tue, 23 Apr 2019 17:07:18 +0000

This breaks my heart but I completely understand. It’s one of the main reasons I didn’t want to apply for a blue badge because deep down, I knew it was futile and I would spend too much energy trying to get one and being rejected than it was worth!! Luckily, I have improved a lot and I don’t need one now but if I ever did in the future, I don’t know what I would do. I really do hope the application process adjusts as well, the stigma definitely needs to be broken!