So, let’s talk about working with a chronic illness.
We all know that managing a chronic illness is like a full-time job in itself. Not everybody with a long-term condition is able to work, and nobody should ever be forced into a job to the detriment of their health and wellbeing. However, hundreds of thousands of talented disabled individuals want to work, and are just looking for the right opportunity to do so. Since I started blogging, there’s one question I’ve consistently been asked more than any other: how do I find my flexible, work-from-home opportunities?
My name is Pippa, and I’m a disabled writer, speaker, and communication consultant. I started my career in employment, but these days I’m a self-employed freelancer. Nevertheless, the core parts of my work have stayed fairly consistent. I currently split my time between consultancy and content creation in the charity sector, freelance writing and blogging, speaking and media work, social media and disabled influencer shenanigans, and incessantly guzzling tea whilst making to-do lists.
If you feel it would be helpful, you can find out more about my background here, and read about my personal career journey so far (including employment and self-employment!) in this post.
This post first came about rather spontaneously, following preparations for a livestream where I was to discuss accessible employment and managing work with a chronic illness. It was whilst doing my prep that it hit me: although many of us talk about our personal experiences, there isn’t really a great deal of practical support and signposting to actual resources and opportunities.
So, that led me to here. A blog post hastily put together before the livestream, which I’ve since returned to and have been expanding ever since. It’s no secret that there simply aren’t enough flexible opportunities out there for chronically ill people, with many employers yet to realise they’re missing out on a huge wealth of talent, but I’m working on it. And in the meantime, I hope these resources go some way in helping you to kick-start your own career. In my humble opinion, any organisation would be lucky to have you.
If you find this post helpful, you may also like my YouTube videos and vlogs – especially this playlist dedicated to inclusive education and employment. You can also find me on Instagram, and shop my books and eBooks here!
The following opportunities are organised into schemes, mentoring, work-from-home job searching tips, resources for organisations, and a brief introduction to freelance opportunities. Let’s jump right in…
Schemes:
- BBC Extend: a talent recruitment hub for disabled people, providing industry opportunities in journalism, production, technology and business.
- EmployAbility: a portal of events and vacancies specifically for disabled students and graduates.
- Change100: Leonard Cheshire’s database of paid 3-month internship opportunities with top UK employers. I will say that I had a not-so-positive experience with this one in 2016, where my application was rejected on the grounds that I wasn’t well enough to work full-time: in my opinion, quite a contradiction for a scheme that hails itself as wholly accessible and inclusive. However, I’ve heard that they’re now committed to implementing more flexible working going forwards, so I wouldn’t rule it out purely based on my experience!
- 4Talent: Channel 4’s collection of apprenticeships, training schemes, mentoring and work experience in the media industry. Whilst not exclusively for disabled people, their Support & Advice page highlights their desire to employ more disabled people, and outlines the steps they’re taking to make sure people’s needs are met.
- Reed in Partnership: this programme, by The Reed Foundation has been anecdotally recognised as a particularly supportive scheme for applicants with disabilities. You can search for specific jobs on their site, and they’ll take care of any reasonable adjustments you need to thrive. Many of these positions are managerial/executive, with corresponding salaries.
- VERCIDA: VERCIDA uses specialist technology and AI methods to create a tailored job search. They promote the benefits of having an inclusive workforce, and prioritise working with organisations with diverse initiatives.
- Access to Work: a government scheme to provide practical and financial support for disabled people in work, where reasonable adjustments cannot be covered by an employer. I haven’t experienced this one myself (yet), but Gem Hubbard and Jessica Kellgren-Fozard discuss their own experiences of the scheme in this video (from 13:30 onwards).
Mentoring:
- Scope’s Support to Work programme: a telephone/online support plan up to 20-weeks in length providing employment support for disabled people.
- King’s Trust: a dedicated charity helping people aged 16-30 to access education, employment and training, including business mentoring schemes. You can read a bit about my personal journey with The Prince’s Trust Enterprise programme here!
- Bright Futures UK: workshops, mentoring and tutoring designed for young individuals who are forced to take time out from education due to medical circumstances – both mental health and physical health.
Find Work From Home opportunities:
- Astriid: experts by experience in long-term health conditions at work. We’re working hard to bring our job matching service back, but in the meantime provide support and training to candidates and employers. I’m slightly biased as part of the Astriid team myself, but do come and say hello on Instagram!
- Guardian Jobs: filter searches right down by selecting ‘work from home’ and ‘part-time hours’ options. Some are quite niche, but there tend to be frequent well-paid opportunities for experienced workers in here too.
- indeed.co.uk: similar to above, but with more miscellaneous opportunities. Some are junk, but there are legitimate and remote/flexible hidden gems in there too if you’re prepared to hunt for them.
- EvenBreak: similar to the above, job advertisements aimed at connecting inclusive employers with talented disabled workers. The enterprise also provides online information and resources, and runs campaigns highlighting the benefits of employing disabled people. As of 2016, Channel 4 advertise all their current vacancies on this site. Highly recommend their fortnightly newsletter – one of very few that are worth signing up for and scrolling through!
- Timewise: browse recruiters and individual job opportunities that accommodate flexible and part-time hours. Vacancies are organised according to region and at the time of writing, there are often a handful of remote opportunities listed on there too.
- FlexJobs: a site full of opportunities designed to better work around people’s unique circumstances, including remote and part-time roles. They host success stories and online information guides on their website too. However, it’s only after signing-up that you’re asked to pay a subscription fee to access the jobs, so please proceed with caution!
- PeoplePerHour: A platform that allows people to share one-time jobs for freelancers to search through and apply for. The bonus here is that most jobs listed require less commitment than contracted full-time/part-time work, and you can pursue as many or as few as you feel up to. Lots of social media and digital tasks on this one, ideal for home-working!
- Approach specific charities: if you live with a specific chronic illness or disability, charities dedicated to the cause are often looking to recruit workers with valuable lived experience of that condition or who embody that organisation’s ethos. There’s no harm at all in popping over a friendly email *with your CV*, expressing an interest in future opportunities. This method has worked rather well for me in the past!
Freelance writing/paid blogging gigs:
- START A BLOG: If you want to get into freelance writing, starting a blog is an ideal first step. Get writing, create an online portfolio, put yourself out there, and make sure your contact details are as visible as possible. As somebody who’s been on both sides of the process, a contact form on your page often won’t cut it: whack your email address everywhere you possibly can to increase the likelihood of professionals reaching out. Yes, initially you may be working for free and there’s no guarantee that it’ll ever amount to more, but enjoy the process, and it could pay off. Massively.
- Disabled Writers: These guys are committed to introducing more diversity in the journalism industry. Create a profile to add to their database, which is frequently utilised by those who commission written work. Many opportunities are USA-based, but I’ve had UK copywriting agency offers come from here: potentially a good starting point for those who want to experiment with freelance life.
- The Bloglancer: a brilliant site full of useful tips and advice for monetising and earning a living through your blog.
- Find your people. Use social media to build a community – not only followers who engage with your own work, but people in your chosen field who you admire and look up to. There is so much you can learn from observing the way they go about things, especially if they’re part of the same marginalised group (e.g. chronic illness, BIPOC, LGBTQ+) as you are.
- Pitch to brands: once you’ve built up your confidence and know you have something to offer, it’s completely okay to approach brands and organisations who align with your values. The Bloglancer, mentioned above, hosts the Ultimate Guide to Sponsored Posts: an excellent read for more experienced bloggers looking to begin earning.
For Organisations:
- Astriid: if you’re a business looking to become more inclusive and recruit talent with long-term health conditions, get in touch with Astriid. We provide bespoke training, run by experts by experience, to help you become an employer of choice for this growing community.
- Business Disability Forum: if you’re an organisation looking to become more inclusive and disability confident, this organisation provides pragmatic support and advice, facilitates training and offers specialist networking opportunities to make it happen.
- Disability Confident Accreditation: organisations certified in this way have made commitments and taken action, such as ensuring their recruitment process is as inclusive as possible, to make the most of the talent disabled people can bring to their workplace.
- Endometriosis UK Friendly Employer Scheme: employers can sign up for Endometriosis UK’s scheme to show their commitment to supporting the wellbeing of employees with the condition. By signing-up, organisations will receive free training and resources, and also have their name proudly displayed on the charity’s online list of signatories. This scheme is relatively new but looks to become a good one!
That’s all for now! If you’re aware of any additional schemes or opportunities that I’ve missed, I’d love to hear about them: every single recommendation could turn out to be another reader’s starting block. I’m thrilled to bits to know that this blog post has provided comfort and practical support for readers over these last few years – it truly makes my day.
If you found this post helpful, you may also like my YouTube videos and vlogs – especially this playlist dedicated to inclusive education and employment. You can also find me on Instagram, and shop my books and eBooks here!
As I mentioned at the start, life with an energy limiting condition is tough, and managing chronic illness is like a full-time job in itself. If you are unable work because of your condition, or have had to step back from work, I hope you know that this has absolutely no bearing on your worth or who you are as a person. If, however, you do wish to pursue employment, I wish you all the luck in the world. I know it can be tough to find things that suit both your skillset and your condition management, but it can be so worthwhile. Put yourself out there, and you never know what could happen…
Thanks again for reading! If you know of any tips or opportunities worth sharing, I’d love to hear about them in the comments below!
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10 responses
I have a masters degree and I’m a qualified teacher, but due to my ME, I can’t work a normal job anymore. Which is why my wife and I started our own wedding cake business. It’s still a log of hard work, but because it’s our business, I can be more flexible with my timekeeping! (Sleep on the job)
Sometimes you have to create opportunities for yourself if you have a chronic illness or disability.
We’re totally skint, but I couldn’t be happier.
Oh wow! Thanks so much for sharing this Paul, I couldn’t agree more: sometimes if you can’t find opportunities that are working for you, the best solution is to create them yourself. It was that very thing which led to me starting my social enterprise (Spoonie Survival Kits) in 2015! Wishing you and your wife all the very best!
Pippa this is awesome, what you are doing. Endless income streams we can develop and grow through our blogs.
Thanks so much Ryan, really hope it helps!
Thanks for this Pippa, I currently have a job but am on long term sick leave and not sure if I’ll be able to return. This post has given me some hope I will find a suitable role again,
You’re so welcome Colette, I really hope you find something that works for you!
Very nice set of resources. Thanks for compiling them. I am a visually challenged person from India & I am into Accessibility consulting. I work part-time with Deque Systems due to a chronic challenge that is diagnosed few months ago. When organizations start providing flexible working hours it becomes easy for us to perform our best.
Very well said, thank you so much for your support!
These are fantastic suggestions, Pippa! Since becoming ill and losing my 9-5 job, I’ve gone self-employed but barely make enough for groceries. It’s better than nothing, but I’ve found the hours are much longer and I’m far more stressed yet earning only a fraction of what I could had I have been able to stay in my regular job. But, working from home does have its advantages, especially with chronic illness and pain and when you can’t work as you otherwise would without the health problems. It takes some getting used to, it’s just finding the opportunities that I’ve found particularly hard. I’ve done online surveys for years, but it’s painstaking work and time consuming for very little reward. I still do those but I add in my blog and some odd freelance writing. I’d definitely like more work, and I always keep an eye out for things.
In terms of companies employing those with disabilities and looking for office or flexible home working, it’s great to know there are places out there that are trying to open the playing field a bit, as well as sites to help find these more accessible jobs. I know of Reed but I hadn’t come across their Reed In Partnership scheme before, that’s a great idea.
Fab suggestions lovely.
Caz xx
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